I haven’ blogged about this but in hearing about a 7-year-old who died recently while at school because she had an anaphylactic reaction to peanuts brought my own kids food allergies front and center again. I could have been this little girls mom last summer. We were in Santa Barbara, CA at a cousin’s wedding. It was an amazing day until we were about to leave and my daughter who was 7 said she didn’t feel well. My kids don’t drink soda and we had allowed her to have Sprite that night so I assumed she just had too much soda and her stomach was upset. Without going into all the details over the course of an hour she went from no symptoms to vomiting, hives, and most alarmingly her voice sounded odd to me and she said her tongue felt weird. That’s when I went into panic mode and thought she was having a reaction to something. She had never had this type of reaction before. The only known allergy was to peanuts and that was identified at the age of 2. I carry an epipen and have never used it. We had given her some Benadryl and realized she was wheezing and thankfully the Santa Barbara hospital was 2 minutes away.
My husband is a physician but he was in daddy mode, not doctor mode. I was scared to death trying to not alarm my daughter or my 4yo who was with us as well as my 81-year-old mother. We got to the hospital and as soon as we told them she had a peanut allergy and they saw the symptoms my husband and daughter were taken to the ER for immediate treatment. She was treated and had to stay in the hospital until the swelling around her vocal cords came down to a “safe level”. That was about 5 hours. The worst part now is my daughter was old enough to understand what happened but still too young to process it. I see this has changed her a little. She’s more cautious, she’s a little on edge if we are out somewhere to eat or at a birthday party and I’ve already read the ingredients or done the research. We’ve subsequently had her tested and have confirmed she is allergic to the most common tree nuts which we avoided anyway but now we have to be all the more diligent about it.
My daughter’s school nurse has epipens in her office. I carry epipens, I leave epipens at playdates with instructions how to use if needed. That has become tricky and my daughter only goes to playdates in homes of my friends because acquaintances are not sure about the epipen. I understand that so we just don’t do it. Hopefully, we will never have to use it again but we need to be cautious. I’ve been thinking about this little girl who probably would be still alive today in Virginia had her school had epipens available. Parents like me don’t live in fear everyday for our child but now and then it creeps into my mind, “what if”? Legislation has been proposed to require schools to have epipens available similar to having defibrillators available. A bill has been introduced in the Senate. Please look at this link and if you agree send a letter to your state representative. http://www.foodallergy.org/page/school-access-to-emergency-epinephrine-act1
As a mom, my kids are the most important and precious people in my life. I can’t imagine the grief the mom of this little girl is going through but maybe we can collective help save another child by getting legislation passed for those who are in schools today and could be at risk because there are no epipens available in their school.